Sarah Murnaghan is breathing on her own.
The Organ Procurement and Transplantation Network, yesterday, June 23, made permanent a rule that let children under 12 apply for adult lungs, and the Murnaghans of Newtown Square are celebrating.
An change to the policy made June 11, 2013 in response to then 10-year-old Sarah Murnaghan’s fight for a new lung had been set to expired July 1.
Then Health and Human Services Secretary Kathleen Sebelius refused to waive the rule instead offering a review that would have taken two years. This would have resulted in certain death for the little girl.
In the last year, seven children received adult lungs they would have previously been prevented from receiving.
Some will say that is a modest result. Others will point out that seven families have been spared the heartache of losing a child and wonder why the fight had to be made in the first place.
Sarah, by the way, is doing great and had her tracheostomy removed June 15. She is breathing on her own for the first time in years.